My name is Robert Tollen and I am the listowner of MPD-SUPPORT-L. We currently have approximately 2,600 subscribers in 41+ countries and we've been around since 1994.
Our MPD-SUPPORT-L web site, http://members.aol.com/mpdsupport, offers interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis.
Anyone - patient, family member, or health professional, is welcome to join our growing list of subscribers.
Our archives are available for you to research information.
Our MPD-SUPPORT-L web home page site:
http://members.aol.com/mpdsupport
To subscribe to MPD-SUPPORT-L by email, do the following:
Email to: LISTSERV@LISTSERV.AOL.COMSubject line: blank or just a dash on AOLBody: SUBSCRIBE MPD-SUPPORT-L John Smith(Substitute your first and last name for John Smith's)
Please take the time to review our 500+ participant International Myeloproliferative Disorders Survey, which can be found in .pdf format at the top of our web site, http://members.aol.com/mpdsupport. Any problem accessing this survey, please write to me at lov2laf@bellsouth.net for help.
Any questions, please email me back.
Warm regards,
Robert Tollen, Listmanager, MPD-SUPPORT-L,lov2laf@bellsouth.net
To post, email to: MPD-SUPPORT-L@LISTSERV.AOL.COMTo Search, Join, Leave, Post, or Change Your Settings:http://listserv.aol.com/archives/mpd-support-l.htmlMain web page http://members.aol.com/mpdsupport/http://snipurl.com/hare read MPD questions and add your own comments.See pictures of your listmates www.frappr.com/mpdsupport
Dear Friend,
My name is Robert Tollen and I am the listowner of MPD-SUPPORT-L. If you are not already subscribed to MPD-SUPPORT-L, please check usout. We currently have about 2,600 subscribers from 41+ countries and we've been around since1994.
Since 1994, our MPD-SUPPORT-L web site, http://members.aol.com/mpdsupport,offers interesting information on chronic myelogenous leukemia, polycythemiavera, essential thrombocythemia, agnogenic myeloid metaplasia, chronicmyelogenous leukemia, and myelofibrosis.
Anyone - patient, family member, or health professional, is welcome to joinour growing list of subscribers. Our archives are available for you toresearch information.
Use our EZ web interface to post a message, to reach a listowner, tosubscribe, to unsubscribe, to vacation stop and restart your mail, to reviewand change your delivery options, and for EZ review of our list archives:
http://listserv.aol.com/archives/mpd-support-l.html
Our MPD-SUPPORT-L web home page site:
http://members.aol.com/mpdsupport
To subscribe to MPD-SUPPORT-L by email, do the following:
Email to: LISTSERV@LISTSERV.AOL.COMSubject line: blank or just a dash on AOLBody: SUBSCRIBE MPD-SUPPORT-L John Smith(Substitute your first and last name for John Smith's)
Or, you can just email to me at lov2laf@bellsouth.net with your first andlast name (an anonymous name is OK, if you prefer), saying that you wouldlike to be subscribed, and we'll do it for you.
Since our diseases arerelatively rare, you will benefit by seeing someone who sees a lot of MPD,preferably someone who teaches about MPD. Get evaluated even once at a university level teaching hospital.
Please know that MPD-SUPPORT-L is a patient to patient support group, thatwe have no censorship, and that we are not controlled by an physician, groupof physicians, nor any pharmaceutical company or industry or trade group. Wehave been in existence since 1994.
The following hematologists were listed in American Health Magazine somemonths back as the top USA hem/onc docs that other docs would use forthemselves or family members (excepting Dr. Prchal who wrote to us asking tobe included in our list). Maybe there is one listed in a city near you. Ihope this information is helpful to you.
I urge you to subscribe to our list, and to become a contributor.
Hematology/oncology
Richard T. Silver NY-CornellEd Amorosi NYUJames Armitage NebraskaBart Barlogie ArkWilliam Bell HopkinsKarl Blume StanfordGeo. P. Canellos Dana-FarberJames Crowley Rhode IslandVincent T. DeVita, Jr. YaleRichard Fisher LoyolaStephan Forman City of HopeGeoffrey Herzig Roswell ParkMichael Keating UT AndersonRobert J. Mayer Dana-FarberC. Julian Rosenthal LICHCharles Schiffer DetroitPeter Wiernik Einstein-MontefioreKaren Antman Columbia-Pres.John H. Glick U of PennSandra J. Horning StanfordDavid Johnson VanderbuiltNancy Kemeny Sloan-KetteringRobert B. Livingston WashingtonJohn Macdowald TempleAnne Moore NY-CornellLarry Norton Sloan-KetteringC. Kent Osborne UT San AntonioRobert Ozols Fox ChaseDerek Raghavan Roswell ParkSaul Rosenberg StanfordHoward Scher Sloan-KetteringJames L. Speyer NYUEverett Vokes ChicagoRobert Young Fox ChaseJosef Prchal Baylor Houston
This is the time of year that many people look to make donations. Dr. Spivakhas established a "MYELOPROLIFERATIVE DISORDERS CLINIC" and yourcontribution is requested by me, not them. Whatever you can send or if youcan't send anything, please just write to them and let them know of yourinterest and it will make a difference.
Dr. Jerry Spivak, The Johns Hopkins University School of Medicine, Divisionof Hematology, Traylor 924, 720 Rutland Ave., Baltimore, MD 21205-2196410-955-5454 Fax 410-955-0185
Enclose a note that you would like your donation to go towards research inmyeloproliferative disease, and it will.
Dr. Richard T. Silver in New York City (whom I see yearly) has previouslywritten to me, "If any of your "list"wants to support clinical research inNew York, they can send a contribution to the Cancer Research and Treatment Fund, 1440 York Avenue, P-4, New York, NY,10021." 212 288 5040 Fax 212 472 6012
Please mention our internet mailing list, MPD-SUPPORT-L if you send adonation.
Warm regards,
Robert Tollen, age 58,PV diagnosed 1990, phlebotomy only 5 years, now on IFN 6 MU daily since 1995.Listmanager, MPD-SUPPORT-L, lov2laf@bellsouth.net
To post, email to: MPD-SUPPORT-L@LISTSERV.AOL.COMTo Search, Join, Leave, Post, or Change Your Settings:http://listserv.aol.com/archives/mpd-support-l.htmlMain web page http://members.aol.com/mpdsupport/http://snipurl.com/hare read MPD questions and add your own comments.See pictures of your listmates www.frappr.com/mpdsupport
Our MPD-SUPPORT-L web site, http://members.aol.com/mpdsupport, offers interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis.
Anyone - patient, family member, or health professional, is welcome to join our growing list of subscribers.
Our archives are available for you to research information.
Our MPD-SUPPORT-L web home page site:
http://members.aol.com/mpdsupport
To subscribe to MPD-SUPPORT-L by email, do the following:
Email to: LISTSERV@LISTSERV.AOL.COMSubject line: blank or just a dash on AOLBody: SUBSCRIBE MPD-SUPPORT-L John Smith(Substitute your first and last name for John Smith's)
Please take the time to review our 500+ participant International Myeloproliferative Disorders Survey, which can be found in .pdf format at the top of our web site, http://members.aol.com/mpdsupport. Any problem accessing this survey, please write to me at lov2laf@bellsouth.net for help.
Any questions, please email me back.
Warm regards,
Robert Tollen, Listmanager, MPD-SUPPORT-L,lov2laf@bellsouth.net
To post, email to: MPD-SUPPORT-L@LISTSERV.AOL.COMTo Search, Join, Leave, Post, or Change Your Settings:http://listserv.aol.com/archives/mpd-support-l.htmlMain web page http://members.aol.com/mpdsupport/http://snipurl.com/hare read MPD questions and add your own comments.See pictures of your listmates www.frappr.com/mpdsupport
Dear Friend,
My name is Robert Tollen and I am the listowner of MPD-SUPPORT-L. If you are not already subscribed to MPD-SUPPORT-L, please check usout. We currently have about 2,600 subscribers from 41+ countries and we've been around since1994.
Since 1994, our MPD-SUPPORT-L web site, http://members.aol.com/mpdsupport,offers interesting information on chronic myelogenous leukemia, polycythemiavera, essential thrombocythemia, agnogenic myeloid metaplasia, chronicmyelogenous leukemia, and myelofibrosis.
Anyone - patient, family member, or health professional, is welcome to joinour growing list of subscribers. Our archives are available for you toresearch information.
Use our EZ web interface to post a message, to reach a listowner, tosubscribe, to unsubscribe, to vacation stop and restart your mail, to reviewand change your delivery options, and for EZ review of our list archives:
http://listserv.aol.com/archives/mpd-support-l.html
Our MPD-SUPPORT-L web home page site:
http://members.aol.com/mpdsupport
To subscribe to MPD-SUPPORT-L by email, do the following:
Email to: LISTSERV@LISTSERV.AOL.COMSubject line: blank or just a dash on AOLBody: SUBSCRIBE MPD-SUPPORT-L John Smith(Substitute your first and last name for John Smith's)
Or, you can just email to me at lov2laf@bellsouth.net with your first andlast name (an anonymous name is OK, if you prefer), saying that you wouldlike to be subscribed, and we'll do it for you.
Since our diseases arerelatively rare, you will benefit by seeing someone who sees a lot of MPD,preferably someone who teaches about MPD. Get evaluated even once at a university level teaching hospital.
Please know that MPD-SUPPORT-L is a patient to patient support group, thatwe have no censorship, and that we are not controlled by an physician, groupof physicians, nor any pharmaceutical company or industry or trade group. Wehave been in existence since 1994.
The following hematologists were listed in American Health Magazine somemonths back as the top USA hem/onc docs that other docs would use forthemselves or family members (excepting Dr. Prchal who wrote to us asking tobe included in our list). Maybe there is one listed in a city near you. Ihope this information is helpful to you.
I urge you to subscribe to our list, and to become a contributor.
Hematology/oncology
Richard T. Silver NY-CornellEd Amorosi NYUJames Armitage NebraskaBart Barlogie ArkWilliam Bell HopkinsKarl Blume StanfordGeo. P. Canellos Dana-FarberJames Crowley Rhode IslandVincent T. DeVita, Jr. YaleRichard Fisher LoyolaStephan Forman City of HopeGeoffrey Herzig Roswell ParkMichael Keating UT AndersonRobert J. Mayer Dana-FarberC. Julian Rosenthal LICHCharles Schiffer DetroitPeter Wiernik Einstein-MontefioreKaren Antman Columbia-Pres.John H. Glick U of PennSandra J. Horning StanfordDavid Johnson VanderbuiltNancy Kemeny Sloan-KetteringRobert B. Livingston WashingtonJohn Macdowald TempleAnne Moore NY-CornellLarry Norton Sloan-KetteringC. Kent Osborne UT San AntonioRobert Ozols Fox ChaseDerek Raghavan Roswell ParkSaul Rosenberg StanfordHoward Scher Sloan-KetteringJames L. Speyer NYUEverett Vokes ChicagoRobert Young Fox ChaseJosef Prchal Baylor Houston
This is the time of year that many people look to make donations. Dr. Spivakhas established a "MYELOPROLIFERATIVE DISORDERS CLINIC" and yourcontribution is requested by me, not them. Whatever you can send or if youcan't send anything, please just write to them and let them know of yourinterest and it will make a difference.
Dr. Jerry Spivak, The Johns Hopkins University School of Medicine, Divisionof Hematology, Traylor 924, 720 Rutland Ave., Baltimore, MD 21205-2196410-955-5454 Fax 410-955-0185
Enclose a note that you would like your donation to go towards research inmyeloproliferative disease, and it will.
Dr. Richard T. Silver in New York City (whom I see yearly) has previouslywritten to me, "If any of your "list"wants to support clinical research inNew York, they can send a contribution to the Cancer Research and Treatment Fund, 1440 York Avenue, P-4, New York, NY,10021." 212 288 5040 Fax 212 472 6012
Please mention our internet mailing list, MPD-SUPPORT-L if you send adonation.
Warm regards,
Robert Tollen, age 58,PV diagnosed 1990, phlebotomy only 5 years, now on IFN 6 MU daily since 1995.Listmanager, MPD-SUPPORT-L, lov2laf@bellsouth.net
To post, email to: MPD-SUPPORT-L@LISTSERV.AOL.COMTo Search, Join, Leave, Post, or Change Your Settings:http://listserv.aol.com/archives/mpd-support-l.htmlMain web page http://members.aol.com/mpdsupport/http://snipurl.com/hare read MPD questions and add your own comments.See pictures of your listmates www.frappr.com/mpdsupport
posted by Robert at 2:51 PM
1 Comments:
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